Who we are

A nonprofit built by people who know pain.

Pain Ontario Society is a community-based nonprofit incorporated September 7, 2023. We exist because the systems Ontarians rely on to manage pain are not built for them — and because the people who live with pain, the clinicians who treat it, and the researchers who study it have been waiting too long for someone to organise the work.

Our story

Why we exist.

Chronic pain affects almost 3 million Ontarians. It is poorly understood, highly stigmatised, and chronically under-resourced. Care is fragmented across primary care, hospital pain clinics, mental-health services, social services, and a patchwork of community organisations. People in pain spend years navigating that patchwork — usually without a guide.

In 2023, a small group of advocates with personal and professional experiences of pain looked at the gaps and decided to build something. We talked to dozens of people with pain, caregivers, pain clinicians, academics, and members of professional associations to determine the principles and the strategic pillars that would guide the work forward. On September 7, 2023, we incorporated as Pain Ontario Society.

We are board-led and built on a foundation of lived and professional expertise. We work to dismantle stigma, address systemic oppression, amplify the voices of people impacted by pain, and champion compassionate, evidence-based pain care across Ontario.

What guides us

Mission, vision, values.

These are not decoration. They shape what we work on, how we work, and who is at the table.

Mission.

To transform how pain is understood and managed across Ontario, through connection, education, research, and advocacy.

Vision.

Connected communities navigating pain together.

Values: dismantle stigma.

Pain is real, complex, and often invisible. We work to change the cultural and clinical narratives that dismiss people in pain.

Address systemic oppression and inequities.

Pain care reflects the systems it is built inside. We name those systems and push to change them.

Amplify the voices of people impacted by pain.

People living with pain and the people who care for them are experts in their own lives. Our work centres them.

Champion compassionate, evidence-based care.

Care that respects the person and is grounded in the best available evidence — not one or the other.

Leadership

Our board.

The board is comprised of people with lived and living experience of chronic pain alongside clinicians, researchers, educators, and community organizers.

Learn more

We work with

Pain CanadaCanadian Pain SocietyChronic Pain NetworkOntario Chronic Pain NetworkSolutions for Kids in Pain (SKIP)Health Canada